MMPP: My Most Popular Posts

Before and After Photos of my girlie-girl, Natalie

Calorie Requirements by Age and Recipe Calorie Counts

Feeding Schedule Using 2 Ounce Syringes

Unclogging a G-Tube and Attachments

Recipes and Other Info

New Book

I’m reading a new book titled The Shape of The Eye by George Estreich. What an excellent book!  He is the father of Laura, who has Down Syndrome.  Feeding issues are present throughout, along with an honest (without being discouraging), factual, reflective, inspiring account of the journey, parenting a child with extraordinary needs.

  Here are two excerpts:

“The disagreement over the NGtube was marked not by conflict, but by a maddening lack of specificity. Theresa wanted to know what happened if things went wrong; she wanted a plan to help Laura learn to eat again. Instead of a plan, she got reassurance.  She was told the NG tube was not particularly invasive, that parents loved it because it made things easier, that it would only be in for a few days, that it would not be uncomfortable for Laura at all. True, perhaps, for other parents, but not for us. As it turned out Theresa’s intuition was correct: NG tubes can have profound effects on an infant’s feeding patterns.”

and…

“Speech, like eating, is as complex as it is ordinary. With typically develping children, the complexities are obscured. When Ellie began to talk – she said her first word, light, on an airplane, pointing up at the reading lamp – we were surprised and happy. But we hadn’t talked to a speech pathologist, and we didn’t know that her tongue had to be behind her upper teeth to pronounce the l. She was eight months old. Laura, at fifteen months, seemed stalled. She could say da da da, and that was it.”

Go here or here if you are interested in the book. I’m enjoying it. It is nice to hear someone else’s perspective/experience and from the voice of a loving father – very nice.

Merry Christmas!

Here are the pics we SHOULD have put on our Christmas card!

The first thing we did was go to every coast of the country and scan the horizon for the navy vessel our son has been assigned to.  Here is what we found:

see that dark dot on the horizon? That's it!

Then we started with family members closer to home…

Cute pic of Daddy/Daughter love….

Daddy/Daughter

Now for the fun stuff. Yesterday Seth, Natalie and I went downtown, picked up Brett, Bonnie, and Kiwi and got some exercise.  First to Lake Michigan, which looked super cool. Click to make it bigger.  Looked like a good place for either a: a monster to rise up out of the deep or b: a jump into the cloud-like water (brrr).

Lake Michigan

Our walk included sand, water, mud, climbing, running, throwing stuff but NO SNOW!! sad.

beginning of our 450 mile walk

boys and toys

happy hiker Natalie, for now

brothers are the best!

brothers are still the best!

fun with sticks, stones, and dogs

After the hike to tire the four-legged monster, (whose owners, BTW, have a doggy-cam so they can see what the potential monster is doing while they’re away – and she was a perfect angel all six hours!) we went to Millenium Park for some skating!! a smidge of a wait made our minds (and the picture) kind of blurry, between the cold and the boredom.

Waiting for Skating

Since B & B own their skates, no wait for them!

Cute couple, eh?

So then, Brett, the weekly hockey player, does some of his fast skating and super-fast stopping.  No-one was in any danger ever, but some people got a little scared!  Kinda funny!  He would skate super-fast toward the railing and stop right in front of us while we waited – never even touching the rail, but people backed up!  I think they didn’t want to have to catch him when he flew over the railing since he is not a tiny guy! Of course, who WOULD you want to catch when they come at you at skate+ice speed!!!

Hockey dude scaring everyone

Skating at Millenium Park

finally we are done waiting and Seth heads out – all I see is the back of him from then on!

A little easier to catch a photo of Nat, since she isn’t too swift on the skates!

Pseudo-Skater assisted by Skaters

We fully utilized the time between Zamboni breaks and then went onto the Bean – a Chicago original!

See the reflection?

and just because I don’t want my photog skills to “make you feel inadequate,” here is another blurry one:

Blurry Bean Time

More "Bean" time

and the best bean photo is the last pic:

At the "Bean"

We will get pics of Kari, Kurt, and their child Marshall on Christmas Day!  and Sean will be here from the 30th to Jan 6th, so if you are really bored, check back for more pics after that!

#LoveMyFamily #ChristmasIsTheBest  #You’reStillReadingThis? #EnjoyTheChristmasSeason!

Love,

From the Rickerts

Too Hot To Handle – updated

Sometimes when feeding blended meals via g-tube, the food is actually too hot to put in the tummy!  Our mouths are our first line of defense, protecting our bodies from food that is too hot to eat.  But we still have to protect our stomachs from very hot food.  If we can burn our mouths with food, we can certainly burn our stomachs, as well.

When I make a quick batch of blended food sometimes it is too hot for immediate feeding.  Here is a great solution that works quite quickly (but see my update at the end of this post):

Bag of Ice in Blended Food

The advantage of putting ice in a bag before putting it in the food is that it prevents dilution.  If you are trying to control calories, or maximize them, adding water would of course reduce the calorie count per ounce.

I’ve also tried running cold water over a syringe.  The bag of ice in the food works much more quickly.

Quick tip:  If the syringe full of food feels hot in your hand, it is most likely too hot to deliver to a stomach.

 

 

UPDATE:

I was very happy to get some additional information from a colleague – a PhD and Chef who is the Senior Instructor in Food Safety & Sanitation at the Hawaii Foodservice Academy.  He explained why we should probably sanitize the outside of the ziploc bags before plunging them into our food:

“The cooling process you are describing is very similar to the “ice paddles” that we use in kitchens to cool large pots of soups and liquids very quickly. It is a very effective cooling method.

The reason I recommended sanitizing the bags is because they are being used to cool food specifically for someone with a g-tube. Normally the bags would not need to be sanitized if they are new. This step would only be necessary if the individual with the g-tube happened to have a weakened immune system, either caused by an illness or medication that they may be taking.

The bags are made to FDA food grade container specifications, but as any food container they are primarily concerned with the sanitation of the inside of the container not necessarily the outside of it. The inside of the bags are sanitary, but the outside of it may not be because the manufacturers nor the FDA foresee food intentionally coming into contact with the outside of the container.

Let me give you a little first-hand experience that I had with Zip Lock bags. When I was younger I used to work for Dow Chemical where Zip Lock brand bags are manufactured, and I would see the processing and storage conditions they would go through.

When the bags are made, they experience high enough heat in their production to kill off any bacteria that may be present at that time. Since the plant does not manufacture food or medications, bacterial testing is not required by the FDA to be performed on the assembly line for bacteria. Then they are packed in thin cardboard boxes that are not sealed airtight and sit for months in dusty warehouses before being shipped out.

After Dow Chemical I was a cross-country truck driver, and one of our contracts was for Dow Chemical once again. I would haul the same Zip Lock bags from the plant to distribution warehouses in other parts of the country. They are not treated as food products, so they are not required to be kept in an environment that is as clean as if food were kept in it. You would not want to know some of the things I have seen in these warehouses. Finally they travel to grocery stores where they are once again treated as something that should be kept clean.

I was actually “introduced” to the world of microbiology and foodborne illness when I contracted a foodborne illness from eating in a hospital cafeteria. I have dedicated the rest of my life to learning as much as possible about foodborne illnesses, their cause, and how to prevent them. I am now in the middle of writing a book on the subject. “

Thank you, Dr. Anderson, for this very helpful information!  From now on, I will be spraying the outside of bags with either a 10% bleach solution or a 10% vinegar solution and letting them sit for a few minutes, then rinse and dry before using IN food.

Eggs

I just read this over at Yahoo Health’s “8 ‘Scary’ Food Myths – Busted!” by David Zinczenko

“Nutrition “Scare” #8: Eggs are Cholesterol Bombs!

Perhaps the biggest nutrition myth is that eggs are bad for your heart, a fact attributed to the cholesterol in the yolk. But here’s the truth: The dietary cholesterol found in eggs actually has little effect on the amount of cholesterol in your blood. When it comes to increasing LDL (“bad cholesterol“), trans and saturated fats are the real culprits. The incredible, edible egg is actually an excellent, affordable source of protein and B vitamins, and it may help you lose weight. A 2008 study in the International Journal of Obesity found that dieters who consumed two eggs for breakfast each day lost significantly more weight than those who consumed bagels.”

I have heard from several sources about the wonderful value of eggs as a source of protein and how our fear of them is very misleading. So, continue to do your research and consider using eggs in your blended meals recipes, like this one! 

AFTER the Medical Appointment

As the parent of a child with special needs, our car knows the way to the local children’s hospital by itself. I honestly have NO idea how many times we have visited over the last 13 years, and I don’t want to.

One of my goals over the years has been to create a way to transition from the difficulty of medical appointments/procedures to happier time.  Some years this has been easier than others. We are lucky in that we live outside of Chicago and there are lots of options to choose from.  For a loooong time we went for a quick trip to the local zoo, which does not charge an entrance fee. The zoo is just a 5 block walk from the children’s hospital.

Other times, just having a book of family photos in the car has helped her make the transition. Other ideas include a tea party at home (water in a cup with Mom), looking at a favorite book, time alone with me in which we can both relax and see that we survived.

The actual event is not as important to her as the consistency.  When we always have something to look forward to, she focuses on that, making the actual medical appointment more tolerable and recovery quicker/easier.

time with mom

book / cd

Happy to leave the hospital!

swinging

tea party

visiting her favorite horse

when we don't have time for a real horse...

mini-golf

sometimes the only comfort is bed and dog

Happy time: my girl, at her big sis's wedding

COLD water

Do you notice when you prepare food how often the instructions say to start with a pan of cold water? Whether it is for boiling pasta, corn, rice, oatmeal, etc. the instructions invariably say to use cold water. I recommend using cold water in my recipes also.

Here is the reason:  ”All” plumbing pipes can contain lead.  It is THOUGHT that HOT water pulls more of the lead from the pipes into the water.  Using cold water is THOUGHT to not pull lead from the pipes. However, I use my PUR water filter to avoid the issue altogether.  But don’t run hot water through a PUR – it ruins the filter.

So, although it would take less time to boil hot water, use cold, okay?

My Published Article

Here is the link to my article published in Complex Child Magazine.

It is called “Living at Natalie’s Speed” … I wrote it as a reminder to myself, and to anyone else who needs it, that one of the positive aspects of our special needs family member is the necessity of slowing down.  I normally live at Mach 10, but with Natalie, life goes much slower, and I am actually happier that way.  Life is sweeter at a slower pace.

That being said, I just started a job today.  We’ll see how that mixes in!

More Unclogging Info

There are those times, when feeding someone via g-tube, that extension tubes and/or the actual button get clogged.  It is a rare day for me, lately, but just last night AND THE NIGHT BEFORE, Nat’s button got clogged.

Now while it is easy enough to replace an extension tube if you cannot get it unclogged, replacing the actual button is certainly not meant to be a daily event.

How can you tell whether it is the extension tube or the actual button? When the blockage occurs, pull back hard on the syringe plunger. If that doesn’t unclog the tubing, detach the syringe and extension tube.  After it is detached, see if it is still clogged.  If you are able to either pull back on the plunger or push it forward freely, then the tubing is not the problem.  Before you work on the actual button, reattach the extension tube and plunger and try it again.  If it is immediately clogged, then your problem is probably in the actual button.

Pen pointing at clog location

In the picture above you see the button after it has been removed from my daughter’s stomach. Removing it is not necessary to unclog the button.  Normally, though, to remove and replace the button, the syringe in the package for the new button is the one you use to deflate the balloon that keeps the button in place.

So, the syringe is inserted, in this case, in the side port, not the port where you attach the extension tube.

Well, to unclog the button, use that same syringe, filled with water, but insert it in the port where you normally attach the extension tube for feeding, like this:

syringe attached to feeding port

Then push the water through.  You may have to do it more than once to free the clog. Word of warning: You can actually break the balloon or the tubing of the g-tube. The way you’ll know is if,  A) when you use the g-tube it leaks – water or food comes back out the button when you detach the extension tube.  You can continue to use it this way, by just closing it quickly after feeding, but it is a bit of a pain. and, B)if you tug a little bit on the button and it comes out, then the balloon isn’t working.  All sounds bad, but unclogging it is at least worth a TRY, right?

Here’s what the syringe looks like when it is not attached:

Catheter tip syringe

It has a nice short tip so it doesn’t break the valve inside the button.

The reason for my clog?  The doctor we saw last week prescribed antibiotics IN CAPSULES! So I opened the capsules and poured them in the syringe, added water, shook and had a clog. Twice. Two days in a row.  The first time I changed the button. But kept the clogged one. I worked on unclogging it and when the second button clogged last night, I replaced it with the unclogged one.

This can be a busy, busy life, eh?

If you have questions, or I haven’t been clear leave a comment or email me, ok?

PedalingBackwards@gmail.com

Beets and Beet Greens

Beets seem like the funniest little vegetables.  In our culture, we don’t really consume them often, but they have some important nutrition, especially when raw!   Here are some facts I’ve found on the internet, specifically at a website called The World’s Healthiest Foods:

Beets belong to the chenopod family which has some unique health values not readily available in other foods. Chenopods include chard, spinach, and quinoa. Here are a couple things you want to know about beets:

  1. There is a special connection between their phytonutrients and our nervous system health
  2. In a recent lab study on human tumor cells, betanin pigments from beets have been shown to lessen tumor cell growth
  3. The longer you cook beets, the more they lose the betalains’ nutrient value
  4. The phytonutrients betanin and vulgaxanthin have both been shown to provide antioxidant, anti-inflammatory, and detoxification support
  5. They are a wonderful source of folate
  6. Beet greens are incredibly rich in nutrients
According to the above-referenced website, beeturia (a reddening of the urine after consumption of beets) occurs in 10 – 15% of adults.  It is not considered harmful in and of itself, but it may be a possible indicator in one particular set of circumstances involving problems with iron metabolism. Individuals with iron deficiency, iron excess, or specific problems with iron metabolism are more likely to experience beeturia than individuals with healthy iron metabolism. So if you experience beeturia, it is worth following up with a healthcare professional to verify iron status.
Two more bits of info for you…
Beets do not need to be peeled… the peels contain lots of nutrients and can be scrubbed well before use.
One or two whole medium beets per week is enough to benefit from their rich nutritional value.